Providing a voice for mesothelioma patients

Mesothelioma UK is committed to giving mesothelioma patients across the UK a voice so they can be heard.

We’re all aware of the impact that COVID-19 and its subsequent restrictions have had on cancer services and people affected by cancer. We also know that cancer charities have a critical role to play in shaping and influencing the national strategy for treatment and care of patients, going forwards.

With this key advocacy role in mind, Mesothelioma UK has recently joined forces with the leaders of other One Cancer Voice charities nationwide to write to Sir Simon Stevens, Chief Executive Officer of the NHS, outlining our concerns (and support for the NHS) with some suggestions on what more can be done, focusing on the role of the independent sector, clear communications for people affected by cancer and more.

We’ve also recently written formally to Matt Hancock, Secretary of State for Health and Social Care for confirmation of the Government’s approaches to delivering chemotherapy at home, funding for more research, and support for an asbestos awareness, removal and improved management campaign in specific public buildings.

We will publish details of any responses received, as appropriate, through our usual communication channels.

Liz Darlison, CEO of Mesothelioma UK said: “As a leading UK cancer charity, we have a duty to ensure that the voices of mesothelioma patients and their families are represented on a national level. Through collaborations with influential groups such as the One Cancer Voice and through our own efforts, we’re trying to gain interest and commitment to address issues and concerns that will hopefully offer our patients, their families and carers greater confidence in how their treatment is being impacted by all of the ongoing changes.”

If you have any ongoing concerns in relation to any of these issues, please contact us at

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