It can feel uncomfortable talking about palliative care because of the association with end of life. However palliative care is far wider than this, it is about living well.
Being diagnosed with mesothelioma suddenly throws you into a world full of often unfamiliar concepts and terminology. This, coupled with the emotional impact, can make it hard to take everything in and make decisions.
Palliative care can signpost you and your family to resources and further support. This can help you navigate your care and feel equipped to make choices that will enable you to live better with mesothelioma.
“I wasn’t aware how much other stuff happens at hospices – nice things, spirituality, general care, informal chats about medication with a GP, making friends, having fun, crafts, meals etc… I know Mum really valued her weekly visits to her local hospice – long before she died there.” Peggy
What it is
Palliative care encompasses physical symptoms as well as those relating to your psychological, emotional, and social needs.
It’s about identifying what matters to you and how you can achieve your goals, be that via the use of assistive equipment or exploring your pain relief options.
What it isn’t
Receiving palliative care does not mean you have to give up other types of treatment such as chemotherapy and immunotherapy.
How do I get palliative care?
If your healthcare team has not raised palliative care with you and it is something you’d like to talk about, ask about it. You can also contact Mesothelioma UK and ask for a call back from a mesothelioma Clinical Nurse Specialist. They are highly skilled, and the majority have received training or education in palliative care. Call freephone 0800 169 2409.
Further reading What is palliative care? (www.mariecurie.org.uk/help/support/diagnosed/recent-diagnosis/palliative-care-end-of-life-care)