Support Groups
Support
groups
There are local support groups across the UK that can offer help and support locally to patients, carers and family members. Some of these groups are patient support groups, where patients and family members come together to meeting, offer support and often listen to invited speakers on topics such as diet and mesothelioma.
For younger people affected by mesothelioma and for those caring for someone with mesothelioma, there are specific groups you can attend to connect with others going through the same experience.
There are also Asbestos Support Groups which provide a range of services, including benefits advice. Often the Asbestos Support Groups run or host the Patient Support Groups.
Please note: Unless specified the following are not Mesothelioma UK support groups. They are run by other organisations/charities. For the latest information regarding these groups, please contact them directly using the contact details provided below.
Asbestos Awareness & Support Cymru (AASC)
Website: www.a-a-s-c.org.uk
Tel: 01495 272 479
Email: enquiries@a-a-s-c.org.uk
Manteg, Penslade, Fishguard, Pembrokeshire. SA65 9PB
Area Covered: Wales
ASG or PSG: Both
Action on Asbestos
Website: www.actiononasbestos.org.uk
Tel: 0800 089 1717
Email: phyllisc@actiononasbestos.org.uk
admin@actiononasbestos.org.uk
245 High Street, Glasgow, G4 7QR
Area Covered: Scotland
ASG or PSG: Both
Asbestos Action
Website: www.asbestosaction.org.uk
Tel: 0808 1961861
Email: info@asbestosaction.org.uk
16-18 Whitehall Street, Dundee, DD1 4AF
Area Covered: Scotland
ASG or PSG: Both
Bristol and Beyond Asbestos Family Support (BBAFS)
Website: www.bristolasbestossupport.co.uk
Tel: 0117 414 1900 (Anna Morley)
Info on dates and times of group meetings: Every 2nd Monday of the month. See website for venue: www.bristolasbestossupport.co.uk/events
Area Covered: Bristol and South West
ASG or PSG: Both
Clydebank Asbestos Group
Website: www.clydebankasbestos.org
Tel: 0141 951 1008
Email: enquiries@clydebankasbestos.org
24 Kilbowie Road, Clydebank, G81 1TH
Area Covered: Scotland
ASG or PSG: ASG
HASAG Asbestos Disease Support
Website: www.hasag.co.uk
Tel: 02380 010015 and 02380 010016
Email: info@hasag.co.uk
Unit 19 Basepoint Centres, Andersons Road, Southampton, SO14 5FE
Area Covered: South, South East, London and Home Counties
ASG or PSG: Both
Info on dates and times of group meetings: www.hasag.co.uk/coffee-mornings/
Greater Manchester Asbestos Victims Support Group
Website: www.gmavsg.org
Tel: 01612580166
Email: info@gmavsg.org
Windrush Millennium Centre, 70 Alexandra Road, Manchester, M16 7WD
Area Covered: North West England
ASG or PSG: Both
Info on dates and times of group meetings: www.gmavsg.org/living-well-support-group/
Guys & St Thomas’ Mesothelioma Support Group
Website: NA
Tel: 0207 188 4758
Email: rachel.c.thomas@gstt.nhs.uk
Rachel Thomas, Guy’s Hospital, Great Maze Pond, London SE1 9RT
Area Covered: London
ASG or PSG: PSG
Info on dates and times of group meetings: 3rd Thursday of every month from 11am to 12pm. Call or email for details.
Asbestos Support Central England
Website: www.asbestossupportce.org
Tel: 0121 678 8853
Email: info@asbestossupportce.org
Asbestos Support Central England, BVSC, 138 Digbeth, Birmingham, B5 6DR
Area Covered: West Midlands
ASG or PSG: Both
Info on dates and times of group meetings: 2nd Monday of each month
Yorkshire and Humberside Asbestos Victim’s Support Group (SARAG)
Website: www.saragasbestossupport.org
Tel: 01709 360672
Email: enquiries@saragasbestossupport.org
Unit 37, Moorgate Croft Business Centre, Rotherham, S60 2DH
Area Covered: Yorkshire and the Humber
ASG or PSG: Both
Papworth Mesothelioma Social Group
Website: www.papworthmesosocial.com
Tel: 01223 639591
Email: kateslaven@nhs.net
Thoracic Oncology, Royal Papworth Hospital, Cambridge Biomedical Centre, Papworth Road, Cambridge, CB2 0AY
Area Covered: East of England
ASG or PSG: PSG
Merseyside Asbestos Victim Support Group (MAVSG)
Website: www.mavsg.org
Tel: 01512361895
Email: info@mavsg.org
108 Century Building, Brunswick Business Park, Liverpool L3 4BJ
Area Covered: North West England
ASG or PSG: Both
Mesothelioma Support Yorkshire (MESSY)
Website: www.messy.org.uk
Tel: 07875 511323
Email: simon.bolton1@nhs.net
Huddersfield Royal Infirmary, Acre Street, Lindley, West Yorkshire, HD3 3EA
Area Covered: Yorkshire and the Humber
ASG or PSG: PSG
Cheshire Asbestos Victims Support Group (CAVSG)
Website: www.cavsg.co.uk
Tel: 01928 576641
Email: Cavsg@btconnect.com
3 Fryer Street Runcorn WA7 1ND
Area Covered: Cheshire
ASG or PSG: ASG
EEA-PSG East of England Asbestos Patient Support Group
Website: www.eastofenglandasbestos.co.uk
Tel: 01223 660 206
Email: info@eastofenglandasbestos.co.uk
Area Covered: Norfolk, Suffolk (Norwich, Bury St Edmunds and Wells next the Sea, North Norfolk)
ASG or PSG:
Info on dates and times of group meetings:Please see our website for the most up to date information on dates/times of support groups meetings.
Anglia Asbestos Disease Support Group
Website: www.angliaasbestos.co.uk
Tel: 01603 703244
Email: vicki.clover@ashtonslegal.co.uk
Area Covered: Norwich, Bury St Edmunds
ASG or PSG:
Info on dates and times of group meetings: All meeting currently being held online via Zoom. Contact Vicki Clover on 01603 703 244 if you would like to join the virtual Zoom meetings.
Meets monthly (excluding August) in each of these locations – Norfolk: Postwick Village Hall, Norwich, NR13 5HL. Suffolk: Bury St Edmunds Farmers’ Club, IP33 1HQ
London Asbestos Support Awareness Group (LASAG)
Website: www.lasag.org.uk/support-groups
Tel: 0808 278 2515
Email: support@lasag.org.uk
Farthings, Bridle Lane, Loudwater, Rickmansworth, Herts WD3 JQ
Area Covered: London, Essex, Hertfordshire, Kent and Surrey, and surrounding area
ASG or PSG: Both
Info on dates and times of group meetings: Support groups in London, Surrey, Dagenham, Canterbury, Rainham, Tunbridge Wells and via zoom. Also run friendship groups for families and loved ones in Dagenham and Canterbury.
Cumbria & Lancashire Asbestos Support & Advice Group (CLASAG)
Website: www.disabilityfirst.org
Tel: 07702 180341
Email: carolreid@disabilityfirst.org
259 Whitegate Drive Blackpool FY3 9JL
Area Covered: North West England
ASG or PSG: Both
Info on dates and times of group meetings: Every 3rd Monday of the Month, 1-2pm
South West Asbestos Support & Awareness Group (SWASAG)
Website: www.swasag.co.uk
Tel: 07446 255524
Email: julie@swasag.co.uk
19 Windemere Crescent Plymouth Devon PL6 5HX
Area Covered: Devon & Cornwall
ASG or PSG: Both
Info on dates and times of group meetings: 1st Thursday of every month in Truro, and 3rd Thursday of every month in Plymouth
Readley – Asbestos & Mesothelioma Support North East
Website: www.readley.co.uk
Tel: 07929 391 529 or 07809 466 577
Email: info@readley.co.uk or joanne@readley.co.uk
59 Eade Close, Newton Aycliffe, Co. Durham DL5 7QQ
Area Covered: North East England
ASG or PSG: Both
Derbyshire Asbestos Support Team (DAST)
Website: www.asbestossupport.co.uk
Tel: 01246 380415
Email: mail@asbestossupport.co.uk
34 Glumangate, Chesterfield S40 1TX
Area Covered: East Midlands
ASG or PSG: ASG
Swindon and Wiltshire Asbestos Support Group
Website: NA
Tel: 01793 847 707 (Jennifer Seavor)
Email: support@swasg.com
c/o Jennifer Seavor, Royds Withy King, 34 Regents Circus, Swindon, SN1 1PY
Area Covered: Swindon and Wiltshire
ASG or PSG: Both
Info on dates and times of group meetings: Facebook – ‘Swindon and Wiltshire Asbestos Support Group’ / Twitter – @SWAsbestos
Maggie’s Highlands / mesothelioma Scottish network group
Website: www.maggies.org/our-centres/maggies-highlands/
Tel: 01463 382900
Email: maggieshighlands@maggies.org
Maggies’s Highlands, Old Perth Road, Raigmore Hospital, Inverness, IV2 3FL
Area Covered: Scotland
ASG or PSG: Both
Info on dates and times of group meetings: First Friday of the month, 12-1pm
Whitminster Mesothelioma Support Group
Website: NA
Tel: 07768 566509
Email: gerry.slade4@yahoo.com
Area Covered: South West
ASG or PSG: Both
Info on dates and times of group meetings: First Monday of the Month, 10.30 – 12.30pm – call or email for details.
Lung Cancer and Mesothelioma Support Group at (Virtual) Maggies
Website: www.maggies.org/our-centres/maggies-oxford/
Tel: 01865 751882
Email: oxford@maggiescentres.org
Area Covered: South East
ASG or PSG: PSG
Info on dates and times of group meetings: 1st Wednesday of the month, 2-3pm via Zoom
South Tyneside Mesothelioma Self Help Group
Address: Woodridge Gardens, Oak St., Oxclose Rd., Columbia Village, Washington, Tyne & Wear, NE38 7NZ
Tel: Ray on 0191 4151460 or Hazel on 0191 416 6275
Email: raymond.turnbull1@ntlworld.com
Area Covered: South Tyneside
ASG or PSG: Both
Info on dates and times of group meetings: Contact for details
Support
for carers and younger people
Mesothelioma UK provides a dedicated carers hour each month for people who care for someone with mesothelioma. It gives people an opportunity to connect with others going through the same experience as well as getting advice and information. It’s free to join and held every 2nd Wednesday of the month at 2pm on Zoom. Please email support@mesothelioma.uk.com for a link to the meeting.
The Mesothelioma UK Younger Persons Group is designed specifically to support mesothelioma patients and carers under 55. Meetings are facilitated by Mesothelioma UK Clinical Nurse Specialist Simon Bolton and provide people with an opportunity to share experiences and ask questions. Meetings take place on the 1st Wednesday of the month at 1pm on Zoom. Please email support@mesothelioma.uk.com for a link to the meeting.