If you are looking after someone with mesothelioma, whether it’s as a full-time carer or helping out a few hours a week, we are here to make sure you have the support you need.
We have a dedicated carers hour each month which gives you an opportunity to connect with others going through the same experience as well as getting expert advice and information. Its free to join and held every 2nd Wednesday of the month, currently via Zoom. See below for details. In addition, there are local patient support groups across the UK that can offer help and support locally to patients, carers and family members.
Mesothelioma UK funds three specialist financial advisors, and if you need advice on benefits such as carer’s allowance we can help. If you are thinking about claiming compensation, it is advisable to use solicitors who specialise in asbestos disease claims as this is a distinct area of law with its own specific practices and procedures. For more information see our legal advice page.
It’s really important that you look after yourself too, caring for someone can be physically and emotionally draining. Macmillan has some good information on their website and you can also call our support line. Our support line team is here to help you. They can provide information, emotional support and signpost you to other services. You can call our Freephone Support Line on 0800 169 2409 or email email@example.com. The opening hours of the support line are 8.30am – 4.30pm Monday – Friday.
The Mesothelioma UK Carers’ Hour is designed specifically to support the carers of mesothelioma patients.
Carers’ Hour takes place on the 2nd Wednesday of each month at 2pm on Zoom. Please email firstname.lastname@example.org for a link to the meeting.
Participant numbers are limited to 30 per meeting to allow all to speak and be heard. The format of the meetings will be a short 15-20 minute presentation from a relevant guest speaker; the remainder of the hour being an open discussion and opportunity to ask questions of our speaker. There will always be at least two mesothelioma clinical nurse specialists at the meeting to field any questions.
9th June 2021
Guest speaker: Lillian Marcantoni, Dietician specialising in Oncology and Palliative Care
12th May 2021
Guest speaker: Leah Taylor, Mesothelioma Clinical Nurse Specialist
14th April 2021
Guest speaker: Janet Parkinson, Macmillan Support and Information Manager.