Someone I know has mesothelioma

I care, so I am a carer

For

Carers

A diagnosis of mesothelioma doesn’t just affect the person with the disease, those close to them are affected too.

  • You may want to offer practical help, or emotional support
  • You may struggle with your own feelings about the diagnosis

Whether you live with them full time or not, if they are a family member, friend or colleague, being a carer for someone can mean:

  • Emotional support – company, a friendly face, a listening ear
  • Helping with daily tasks
  • Driving them to appointments
  • Talking to other people on their behalf, such as health and social care professionals
  • Helping with personal care such as bathing and dressing

If any of the above applies to you, we are here to support you.  Read on to find out how.

For Patients

& Carers

The Mesothelioma UK Carers’ Hour is designed specifically to support anyone who knows someone living with mesothelioma.

Not everyone knows how it feels to have a family member or friend living with mesothelioma. Our monthly Carers’ Hour is an opportunity to talk to those who know exactly how it feels.

Facilitated by one of our Mesothelioma UK nurses, should any clinical questions arise, the meetings take place virtually on the 2nd Wednesday of each month at 2pm. For joining details, please contact su*****@*************uk.com

Younger

Patient and Carer Support Group

This group is designed specifically to support mesothelioma patients and carers under 55. Meetings are facilitated by Mesothelioma UK Clinical Nurse Specialist Simon Bolton and provide people with an opportunity to share experiences and ask questions. Meetings take place on the 1st Wednesday of the month at 1pm on Zoom.

Please email su*****@*************uk.com for a link to the meeting.

Planning

for the Future

Are you a patient with mesothelioma and want to know about preparing for the future? We have a short course for you, delivered by mesothelioma health care professionals on Zoom.

Week one:

  • Role of your keyworker, what is an MDT and what is performance status

Week two:

  • Symptom control, pain and shortness of breath

Week three:

  • Symptom control, cough, sweating, fatigue and diet management

Week four:

  • Important documents and palliative and end of life care

Starting Wednesday 4 September on Zoom. Please email su*****@*************uk.com for more information and to sign up.

Carers’

Course

Are you caring for someone with mesothelioma or know someone who is?

Our six-week Carers’ Course will help you learn more about what to expect and where to get support – both for yourself and the person you care for.

Sessions will be presented by Mesothelioma UK Clinical Nurse Specialists and will cover:

  • Getting the best out of your NHS
  • Looking after yourself
  • Symptom control

This free six-week course runs via Zoom for one hour each week, starting Wednesday 16th October 6-7pm. Please email su*****@*************uk.com for more info and to sign up.

Additional

Support

Local support groups across the UK that can offer help and support locally to patients, carers and family members.

Mesothelioma UK fund specialist financial advisors, if you need advice on benefits see our patient information leaflets – downloadable leaflet on benefits.

If you’re thinking about claiming compensation, it is advisable to use solicitors who specialise in asbestos disease claims as this is a distinct area of law with its own specific practices and procedures. For more information see our legal advice page.

Our support line team can provide information, emotional support and signpost you to other services. During office hours, we have one of our Mesothelioma UK specialist nurses available to answer any questions or discuss any concerns or drop us an email anytime.

0800 169 2409    su*****@*************uk.com

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