with asbestos cancer
Mesothelioma UK is a national specialist resource centre, specifically for the asbestos-related cancer, mesothelioma. The charity is dedicated to providing specialist mesothelioma information, support and education, and to improving care and treatment for all UK mesothelioma patients and their carers.
The charity integrates into NHS front line services to ensure specialist mesothelioma nursing is available at the point of need. This is achieved through a growing network of specialist mesothelioma nurses, regionally based in NHS hospitals but funded by Mesothelioma UK.
The charity was launched in 2004 with initial financial support from Macmillan Cancer Support and later from the Mick Knighton Mesothelioma Research Fund. We became an independent charity in 2009 and changed status from a Charitable Trust to a Charitable Incorporated Organisation in 2018.
Mesothelioma UK Charitable Incorporated Organisation is a registered charity in England & Wales (1177039).
Five Year Strategy
In 2016 Mesothelioma UK published its first 5 year strategy. 2021 is the final year of this strategy. We plan to publish a new strategy towards the end of 2021.
In 2020 for the first time we published a research strategy which covers the period 2020 – 2023. The strategy outlines the charity’s plan to offer a range of grant opportunities that will fund research and explore patients’ experiences of care, through to research on patient treatments and outcomes of care.
Mesothelioma UK is proud to be a member of Cancer 52. 55% of UK cancer deaths are from rare and less common cancers.
Despite this, these cancers remain severely under represented and under-funded across all areas, including policy, services and research.
Cancer52 is an alliance of nearly 100 organisations working to address this inequality and improve outcomes for patients with these highly challenging diseases.