Peritoneal patients and carers needed for new study

Are you living with peritoneal mesothelioma? Are you family member or close friend of somebody who is living with peritoneal mesothelioma? If so, the Mesothelioma UK Research Centre (Sheffield) (MURC) needs you for a new study.

There is an increasing awareness that people living with peritoneal mesothelioma may have different experiences to those living with pleural mesothelioma. Evidence suggests that it takes longer for patients with peritoneal mesothelioma to be diagnosed and that there is variability in access to and experiences of care in people living with peritoneal mesothelioma in the United Kingdom (Senek, 2021).

This mixed methods study aims to explore variability in the care pathway of people with peritoneal mesothelioma, and to explore the patient experience of the care pathway. This project is being undertaken in collaboration with Hampshire Hospitals NHS Foundation Trust.

MURC is currently conducting the first stage of the study which involves the completion of a questionnaire. The team has had a fantastic response from the peritoneal mesothelioma community so far and would like to thank those of you who have completed and forwarded the questionnaire. However, they are still looking for more participants. The more patient and carer experiences that they can capture, the more information they have to improve future care.

If you are living with peritoneal mesothelioma or are a family member or close friend of someone who is living with peritoneal mesothelioma or has died from peritoneal mesothelioma, please complete one of the questionnaires below.  Your participation would be kept confidential.

Patient questionnaire.

Family member or close friend questionnaire.

If you would like to find out more about this project, please visit the study page on the Mesothelioma UK Research Centre website.

Senek, M., Robertson, S., Tod, A., & Squibb, M. (2021). Mesothelioma: exploring gender differences
in time to diagnosis, seeking legal advice and occupational risk. Cancer Nursing Practice.
https://doi.org/10.7748/cnp.2020.e1745

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