Living Well with Mesothelioma study now closed

The research study, Living Well with Mesothelioma, conducted by our Clinical Nurse Specialist, Karen Lord, is now closed to recruitment with 28 interviews having been carried out. Karen, and the research team would like to thank the patients, family members and staff who have discussed their experiences and given recommendations as to how to ‘live well.’

The first phase of the analysis is now taking place and results will be published in 2020.

Access to immunotherapy update

As you may be aware from previous issues of our magazine, first line immunotherapy (nivolumab and ipilimumab) for the treatment of mesothelioma is currently under consideration by the National Institute for Health and Care Excellence (NICE) following the results of...

Mesothelioma UK partners with Healthinote

Mesothelioma UK has joined Healthinote, an online digital platform allowing doctors, nurses and pharmacists to find and share reliable health information with their patients. Used by over 3,000 GP practices in the UK, Heathinote enables people to be given an...

New Chemotherapy Booklet

Our new booklet Chemotherapy for Mesothelioma addresses key questions people with mesothelioma may have if they are offered chemotherapy. “Whether to accept chemotherapy is not always a straightforward decision for people with mesothelioma. Our new booklet can help...

Mesothelioma UK appoints new Head of Nursing

Leah Taylor has been appointed as the new Head of Nursing for Mesothelioma UK. In this role, Leah will work closely with the charity’s operational team and trustees, and will provide strategic leadership of the charity’s UK network of 34 Clinical Nurse Specialists....

PIF TICK certification for our patient information

We know how overwhelming a diagnosis of mesothelioma can be, and how good written information can play a vital part in helping people make informed choices. This is why we’re so pleased to have been recertified under the PIF TICK scheme, demonstrating our commitment...