Gendered Experience of Mesothelioma Study (GEMS)

The Gendered Experience of Mesothelioma Study (GEMS) now has enough participants so thanks to all for your interest in this study and in particular, to all those who have offered to take part.


Consultation with health and legal professionals indicates that women may have a different experience to men regarding mesothelioma in terms of awareness of the disease, diagnosis, access to treatment and compensation and legal processes. There are many possible explanations for this but little research to establish what is actually going on.

GEMS is a Mesothelioma UK collaborative study supported by generous donations from 12 King’s Bench Walk, HASAG, Irwin Mitchell, Mesothelioma UK, Papworth Mesothelioma Social Group, and Royds Withy King. GEMS is being conducted by the Mesothelioma Patient Experience Research Group at the School of Nursing and Midwifery, University of Sheffield.

The study is now seeking patients who received a mesothelioma diagnosis more than six months ago who would be able to take part in a telephone interview.

The GEMS study aims to explore the experiences of men and women with mesothelioma, their family carers as well as the various staff with whom they come into contact.

We will seek to understand why any differences that are identified occur. Our goal is to establish with participants how services should best be delivered to be accessible and acceptable to both men and women.

If you have been diagnosed with mesothelioma more than six months ago and would be able to take part in a telephone interview, please email or call free phone 0800 169 2409 for more information and to be put in contact with the research team.