MORE patient feedback needed to improve services
Mesothelioma UK is inviting patients to give feedback on what their experience of investigations, treatment and care has really been like.
The MORE survey (Mesothelioma Outcomes, Research and Experience) will enable Mesothelioma UK to inform healthcare providers about what is being done well, what could be improved and hopefully where there are variations in treatment and care. It will also help us to develop our services to complement those of the NHS and prioritise what kinds of support services we should be offering.
The survey consists of three sections – patient experience of care, quality of life and clinical information. It is completely confidential and will be anonymised.
We’re looking for 600 patients to complete the survey in the next six months. Patients will be invited to take part by their nurse or support group, or patients can call our freephone helpline on 0800 169 2409 or email us at firstname.lastname@example.org to request the survey.
Based on the feedback we receive, we will produce recommendations and circulate them to the wider mesothelioma community and healthcare providers.
Please speak to your nurse or get in touch with us if you would like to help us improve the support available to patients.