My Mesothelioma Care Passport

My Mesothelioma Care Passport is a pack designed to help you keep up-to-date with the planned care that you have discussed and agreed with your health care professionals.

We hope that it will help you to keep track and make sense of what is happening.

It is intended to be a concise record of your care to date, enabling you to understand and discuss with anyone you choose, for example, your
GP, clinical nurse specialist physiotherapist, community nurse, consultant, emergency doctor, clinical trial advisor or anyone else in whom you wish to confide.

If you have requested access to your clinic letters, you can store them here, along with your scan and x-ray reports.

You can also keep your most up to date prescription and other documents you feel may be useful here.

There is also a section for you to store any relevant written information that has been provided to you.

A list of this available information is located at the back of the pack.

The Care Plan section is for you to use as you wish.

You may prefer to ask your nurse or health care professional to write a summary of your recent discussion/consultation, including what the next steps are for you, or you may like to make a note of any questions you have for your next appointment.

Feedback Form for Patients

Feedback form for patients (My Mesothelioma Care Passport)

Thank you for taking the time to fill out this feedback form. Your evaluation and comments will help us to develop this new resource.

    Are you a patient, carer or family member? (required)
    PatientCarerFamily memberOther

    Where were you given the passport?
    HospitalAt homeGP's surgeryOther

    Rate the following on the scales below:

    It was made clear to me what the passport was for
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    Enough information was provided in order to use the passport
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    Using the passport was helpful to me
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    It was given at the right time
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    It was easy to use
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    I will continue to use this passport
    Strongly DisagreeDisagreeNeutralOtherAgreeStrongly Agree

    The information you submit will be processed in line with our privacy policy.
    We will only ever use your details to contact you in relation to Mesothelioma UK. We will not rent, sell or share your details with third parties without your permission.
    Data protection – The information you provide on this form will be held on file by Mesothelioma UK and will be used for the purposes of communicating with you regarding the My Mesothelioma UK Passport. By submitting the form, you consent to the use of your personal data for these purposes.
    The correspondence data may include the communication content and metadata associated with the communication. The correspondence data may be processed for the purposes of communicating with you and record-keeping. The legal basis for this processing is our legitimate interests, namely the proper administration of our website and communications with users.


    If you prefer to print out and send back a feedback form, please click here for a PDF.

    Guide for Healthcare Professionals
    Feedback Form for Health Professionals