Benefits and information

If you have been given a diagnosis of mesothelioma, there are certain benefits that you may be able to claim along with government lump sum compensation. You should not be put off if you have not claimed benefits before. You have a legal entitlement to some of these benefits and some of them are not affected by your level of household income or savings.

To help you with your benefits and compensation questions, we’ve produced a series of facts sheets that you can download below:

For help in identifying exactly which benefits you are able to claim, for help to fill in the necessary forms or to discuss any problems you have with your benefits you can contact the Mesothelioma UK National Welfare Benefits Adviser, Caroline Barry on our freephone information line on 0800 169 2409 or email

Specific information for the North East

Our welfare adviser in the North East has created these leaflet for patients and carers in that region.

The All-Party Parliamentary Group (APPG) for Terminal Illness raises awareness of issues around terminal illness in Parliament. The APPG for Terminal Illness has written a report following its inquiry into the impact of the legal definition of terminal illness on access to benefits for people living with terminal conditions.

Published in July 2019, the report contains the findings from this inquiry and gives recommendations to policy makers on ways to improve the legal definition and guidance to healthcare professionals.