“Get MORE from Mesothelioma UK”

Mesothelioma UK would like to invite mesothelioma patients to have the opportunity to describe their experience of investigations, treatment and care.

We are collaborating with research and analysis specialists to run the Mesothelioma Outcomes, Research and Experience survey (MORE survey).

The survey will enable Mesothelioma UK to inform health care providers about what is being done well, what could be improved and where there are variations in treatment and care.

It will also help Mesothelioma UK to develop its services to complement those of the NHS. Mesothelioma UK will make recommendations representing the patient experience and circulate these to the wider mesothelioma community and health care providers.

If you would like to take part in the survey, please follow the instructions below. You can either complete the questionnaire on-line or on paper.

Before completing the questionnaire, please contact your local Mesothelioma Clinical Nurse Specialist by telephone or email. You can get the contact details of your local nurse by calling our freephone helpline on 0800 169 2409 (Mon to Fri 08:30 to 16:30).

Your Mesothelioma Clinical Nurse Specialist will provide you with a unique patient identifier that you need to record in the survey (online or on paper).

On-line questionnaire

If you would like to complete the questionnaire on-line please click here and follow the instructions:

  • Before completing the questionnaire, please contact your local Mesothelioma Clinical Nurse Specialist by telephone or email. You can get the contact details of your local nurse by calling our freephone helpline on 0800 169 2409 (Mon to Fri 08:30 to 16:30).
  • Your Mesothelioma Clinical Nurse Specialist will provide you with a unique patient identifier that you need to record in the box on the opening page of the on-line questionnaire (without this number you will be unable to complete the survey).
  • Please complete all three sections of the survey
    1. Your experience of care and treatment
    2. Quality of life assessment questionnaire
    3. Clinical management of mesothelioma
  • After you have completed all three sections please click on the “submit” icon at the end of the questionnaire.

For your information, your answers to section 3 will be sent to your local nurse to check that the information provided matches your medical notes.

Do not worry if you are unsure of the answer to the questions asked, please contact your local Mesothelioma UK nurse to assist you.

Paper questionnaire

If you would like to complete the questionnaire on paper please call the freephone helpline on 0800 169 2409 (Mon to Fri 08:30 to 16:30) to get a questionnaire pack, which includes a business reply envelope. To see the survey, please click on this link and print it out.

  • Before completing the questionnaire, please contact your local Mesothelioma Clinical Nurse Specialist by telephone or email. You can get the contact details of your local nurse by calling our freephone helpline on 0800 169 2409 (Mon to Fri 08:30 to 16:30).
  • Your Mesothelioma Clinical Nurse Specialist will provide you with a unique patient identifier that you need to record in the two boxes on the opening page and at the end of the questionnaire (without this number we will be unable to include your survey).
  • Please complete all three sections of the survey
    1. Your experience of care and treatment
    2. Quality of life assessment questionnaire
    3. Clinical management of mesothelioma
  • After you have completed all three sections then please post your survey back in the business reply envelope provided in the questionnaire pack.

For your information, your answers to section 3 will be sent to your local nurse to check that the information provided matches your medical notes.

Do not worry if you are unsure of the answer to the questions asked, please contact your local Mesothelioma UK nurse to assist you.

 

Mesothelioma UK is collaborating with these research and analysis specialists for the MORE Survey: