What We Fund: Audit
What We Fund
Title: Mesothelioma Experience Survey
Funding partner: Mick Knighton Mesothelioma Research Fund
Main researcher: Patient Perspectives
Start date: Dec 2011
End date: April 2012
Detailed info: 652 Patients or carers from across the UK completed a paper survey comprising of 79 questions. The questions followed the patient’s care pathway and copies of the survey were distributed by Mesothelioma UK nurses, via the free phone helpline and by asbestos support groups and members of the National Lung Cancer Forum for Nurses.
Finding provided comprehensive insight into the experience of being diagnosed, treated and cared for following a mesothelioma diagnosis.
Progress reports: The findings are available in a dedicated Mesothelioma UK comprehensive report. They were presented at relevant conferences and published in a peer reviewed journal.