What We Fund: Audit

Title: Mesothelioma Experience Survey

Funding partner: Mick Knighton Mesothelioma Research Fund

Main researcher:  Patient Perspectives

Start date:  Dec 2011

End date:  April 2012

Detailed info: 652 Patients or carers from across the UK completed a paper survey comprising of 79 questions. The questions followed the patient’s care pathway and copies of the survey were distributed by Mesothelioma UK nurses, via the free phone helpline and by asbestos support groups and members of the National Lung Cancer Forum for Nurses.

Finding provided comprehensive insight into the experience of being diagnosed, treated and cared for following a mesothelioma diagnosis.

Progress reports: The findings are available in a dedicated Mesothelioma UK comprehensive report. They were presented at relevant conferences and published in a peer reviewed journal.