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Patient Support Groups

The Asbestos Support Group Forum

Details for UK Asbestos Support Groups

Patient Support Groups

Cancer Information Centres

BARDS - Barrow Asbestos Related Disease Support
Tel: 01229 580305 or email bardsinfo@gmail.com
Area: Cumbria
Services: A service for patients with asbestos related disease, their families and carers. It is provided in St Mary's Hospice in collaboration with the Benefits Agency, Social Services, local unions, the Citizens Advice Bureau and expert lawyers. BARDS meets one the 3rd Monday of each month at St Marks Church which is on the corner of Buccleugh Street and Rawlinson Street, Barrow in Furness, LA14 1BX.

Bristol and Beyond Asbestos Family Support
The Bristol Area Asbestos Family Support Group which was established in May 2011, has now changed their name to 'Bristol and Beyond Asbestos Family Support', The Group has members from Bristol, Bath, Portishead, Bridgwater, Minehead and as far across the Bridge to Barry in South Wales. The group was set up to support people and their families who have been diagnosed with asbestos related lung diease and they put on planned events and study days where they can get together. For more information contact Rachael Wilson on 0117 394 5009.  Next event: Meeting at Filton College, Filton Ave, Bristol, BS34 7AT on Wednesday 2 May 2012 - meeting for coffee at 11:30 in the cafe and then reviewing website and logo designs - the college have kindly offered to provide sandwiches afterwards.  If you would like to attend please call Rachael by Friday 27 April 2012.

Castle Point, Canvey, Basildon & Thurrock
Lung Cancer & Mesothelioma Support Group
Contact Bente Idowu on 0845 1553111  Ext. 3168 & Beverly Waker  01268 593168 Basildon & Thurrock University Hospitals NHS Foundation Trust. Michelle Palmer  01702 435555 Ext 6835 Southend University Hospital NHS Foundation Trust - The meetings are held every 3rd Thursday of the month at the Paddocks Community Centre, Long Road, Canvey Island from  12.30 - 2pm. A light lunch and refreshments is supplied and the aim is to keep it light hearted and informative by inviting relevant speakers the patients think will be useful.

East and North Hertfordshire  Lung Cancer and Mesothelioma Support Group
Contact Patricia Swann 01707 328111 x3319 or Elaine Dockree 01438 781217
Meets every 6 weeks at the local hospital to provide support to patients and carers. Includes refreshments, exercise class, guest speakers. Provides a warm welcome to all patients and carers who have been affected by lung cancer and Mesothelioma.

East Midlands Mesothelioma Support Group - Leicester
Contact Mesothelioma UK on 0800 169 2409
The Group meets on the last Wednesday of the month at Coping with Cancer, Helen Webb House, 35 Westleigh Road, Leicester  LE3 0HH.   The group meets informally each month, except January, for patients and their carers affected by Mesothelioma - all are welcome. Invited speakers provide useful information and friendly support.The topics that have been discussed are breathlessness, complementary therapies, palliative care & symptom management, nutritional advice, keeping spiritually well and taking action & fundraising. Once a year the group organises a day out and each meeting a raffle is held and the money raised goes towards funding this event. Light refreshments are served during the meeting.
Link:  http://www.c-w-c.org.uk/emmsg_a21.aspx 

ELMS - East London Mesothelioma Support
Freephone Helpline: 0800 8766773 Between 5pm - 10pm
Area: East London (Newham, Tower Hamlets, Hackney)
Services: Support, guidance and information for patients, carers, relatives and friends.

Hampshire Asbestos Support & Awareness Group (HASAG)
Contact Lynne on 07940 328637 or Diane on 07792 543426
Support in Southampton
Meets 2nd Thurs each month at 10:30 am at St Marks Church, Archers Road, Southampton, S015 2LU.
Support in Portsmouth
HASAG also meets on 4th Thurs of each month at 10:30am at The Inn Lodge, Burrfields Road Portsmouth, PO3 5HH.
A friendly environment for sufferers of all asbestos related diseases and their families including the bereaved.

Hands of Time Mesothelioma Support Group
Meets 1st Tues of month 11am-1pm Richard Dimbleby Cancer Information & Support Service, 2nd Floor, Gassiot House, St Thomas Hospital, London, SE1 7EH. For patients/carers. Refreshments provided.
Contact Rachel Thomas or Sarah Compton on 020 7188 4758.

Hillingdon Lung Cancer & Mesothelioma Support Group (LungTalk)
Meets 2nd Friday every month 2-4pm at the hospital.  Offers a place for patients and their carers to meet each other and obtain mutual support, guest speakers, complementary therapies and information about all aspects of disease and symptoms.

Leeds Lung Cancer & Mesothelioma Patient Support (LAMPS) Support Group
Contact John White on 0113 2067916.  Meets 1st Monday of each month 1.30-3pm at Robert Ogden Centre, St. James' Hospital, Leeds.

Medway/Swale Lung Cancer & Mesothelioma Support & Information Group
Telephone: Frances McKay, Macmillan Lung/Mesothelioma Nurse, Medway Maritime Hospital on 01634 825212, Caroline Williams, Macmillan Lung Nurse, Medway Maritime Hospital on 01634 825391 or Pat Cameron, Domiciliary Team Nurse, Wisdom Hospice on 01634 830456
Services: The group offers a welcome environment providing mutual support and information for Lung Cancer/Mesothelioma patients and their carers. Meetings are held on the 1st Tuesday of each month from 3pm to 4.30pm at the Day Centre, Wisdom Hospice, St Williams Way, Rochester. Refreshments are available and transport can be provided.

Mesothelioma Support Group at Royal Marsden Hospital, Surrey
Contact Natalie Doyle on 0207 352 8171 Ext 1791 or Sonja Watson on 0208 661 3150

Mesothelioma Support Group at Papworth Hospital, Cambridge
Contact Gerry Slade, Mesothelioma Specialist Nurse on 01480 830541 Ext 4889 -The support group run specifically for mesothelioma  patients and their carers meets at Papworth Hospital on the first Friday of every month. Talks have included relaxation, breathlessness & complementary therapies. The group is very active and has formed its own committee helping to provide mutual support for patients and carers. They have designed their own logo and sweatshirts, wristbands etc and have frequent outings and events to help raise awareness of the disease. A separate meeting every month at Hemingford Abbots Village Hall PE28 9AH is specifically for carers to share concerns & experiences with others in a similar situation. Refreshments provided for both meetings.   Visit the website to find out more about their activities.  www.papworthhospital.nhs.uk/mesosupportgroup

North East Mesothelioma Self Help Groups
North Tyneside Support Group - Meets at Walkerville Community Centre, Pinewood Close, Walkerville, Newcastle upon Tyne. NE6 4SZ on the last Friday of each month (except August and December) between 11.00am and 1.00pm. Telephone Mick Knighton Mesothelioma Research Fund: 0191 2637386.
South Tyneside Support Group - Meets on the first Thursday of each month between 10.30am and 12.30pm at Woodbridge Gardens, Oxclose Road, Washington. NE38 7NL. Telephone Mick Knighton Mesothelioma Research Fund: 0191 2637386.
Both Groups are social and informal and offer a warm welcome to all whose lives have been affected by mesothelioma while providing information and support to sufferers and their families.

Southend Lung Cancer and Mesothelioma Information and Support Group
Contact: Jolly Barber, Jo Phelps or Michelle Palmer on 01702 435555 ext 6835. An informal group providing an opportunity to meet others in a similar position. Meets first Wednesday of the month 12.30pm to 2pm at Coleman Street Chapel, Coleman Street, Southend. Light refreshments.

Swindon & South West Support Groups
Contact 1 Mrs Pat Lewis on 01793 532995
A group for widows and partners of asbestos sufferers. The group meets monthly for friendship and mutual support as well as practical help for people who are nursing a member of the family with asbestos disease.
Contact 2 Janice Howell on 01793 813616
A group for those suffering from asbestos disease and their partners. This group provides lectures by health professionals on various aspects of asbestos disease and there is a free lunch. The group meet for mutual information and support.
Contact 3 Maureen Seabrook on 01822 880233
Wives and Widows Group in Exeter, which meets monthly for friendship and mutual support.

West Hertfordshire Trust  Support Group
Contact  Linda Charalambous  on 01923  217010.  For all West Hertfordshire Trust lung cancer / mesothelioma patients.  Held 1st Tuesday of the month 2-4pm at Stanborough Centre, 609 St Albans Road, Garston, Herts. WD25 9LJ. Including refreshments, guest speakers, complementary therapies, advice, information & support about disease, finances, treatments & what patients/carers wish to include.

Mesothelioma UK - NMMRC undertakes no responsibility for the accuracy of any information contained in non-related websites or given by non-related organisations.

 

 

 

 

 

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