Patient Support Groups
Mesothelioma Support Groups
In addition to the support available from the Asbestos Support Groups there are an increasing number of Mesothelioma specific support groups. Some are run by the ASGs and held within their premises or nearby venue. Some hospitals and hospices have set up Mesothelioma support groups that are run by healthcare professionals. These are usually held monthly within the hospital, have relevant invited speakers and provide a friendly welcome to all those affected by Mesothelioma.
Brief details for all relevant support groups are listed below.
Please note: all these groups and their details are subject to change, therefore please check information before attending.
Tel. Mick Knighton Mesothelioma Research Fund: 0191 2637386. Both groups are social and informal and offer a warm welcome to all whose lives have been affected by mesothelioma while providing information and support to sufferers and their families.
North Tyneside Support Group. Meets at Walkerville Community Centre, Pinewood Close, Walkerville, Newcastle Upon Tyne NE6 4SZ on the last Friday of each month (except August and December) between 11.00 - 13.00.
South Tyneside Support Group. Meets on the first Thursday of each month between 10.30 am and 12.30pm at Woodbridge Gardens, Oxclose Road, Washington NE38 7NL.
Manchester Mesothelioma Support Group is run by Greater Manchester Asbestos Victims Support Group. Welcomes people affected by mesothelioma and their carers, and families bereaved by mesothelioma. The group meets four times per year at Cross Street Chapel, Cross Street, Manchester, M2 1NL and arranges group outings and Christmas lunch. Dates of meetings are scheduled at the end of each year for the following year. The group is actively involved in campaigning and in organising Action Mesothelioma Day in Manchester on the first Friday in July each year. For more information about the group telephone 0161 636 7555 or email firstname.lastname@example.org.
Cumbria and North Lancashire
CARDS - Cumbria Asbestos-Related Disease Support
Phone (answer machine) 07583166681
Monthly open meetings are held in Barrow-in-Furness - all are welcome. Meetings are held on 2nd Wednesday of each month 2pm - 4pm at Barrow & District Disability Association, Margaret Burrow Centre, 71-77 School Street, Barrow-in-Furness, Cumbria, LA14 1EJ
Leeds Lung Cancer & Mesothelioma Patient Support (LAMPS) Support Group. Contact John White on 0113 2067916. Meets 1st Monday of each month 13.30-15.00pm at Robert Ogden Centre, St. James' Hospital, Leeds.
Mesothelioma Support Yorkshire. Contact Simon Bolton on 01423 555872 or Claire Waddington on 01535 294535. Meets 6 weekly at Park Plaza Hotel Leeds between 2pm and 4pm. The first half of the meeting is based around a talk on subjects such as breathlessness, relaxation, new treatments, nutrition and complementary therapies and the second half of the meeting provides and opportunity to talk to other group members over tea and cake. The meetings are all free of charge and refreshments are provided.
Papworth Mesothelioma Support Group, Cambridge The support group runs specifically for Mesothelioma patients and their carers. The group meets on the second Friday of each month at Hemingford Abbots Village Hall PE28 9AH. Talks have included relaxation, breathlessness & complementary therapies. The group is very active and has formed its own committee helping to provide mutual support for patients and carers. We have frequent outings and events to help raise awareness of the disease. A separate meeting every month also at Hemingford Abbots Village Hall PE28 9AH is specifically for carers to share concerns & experiences with others in a similar situation. Refreshments provided for both meetings. Visit our website to find out more about our activities. www.mesopapworth.co.uk or contact Gerry Slade, Mesothelioma Specialist Nurse on 01480 364889 or email on email@example.com.
East & North Hertfordshire Lung Cancer/Mesothelioma Support Group. Contact: Patricia Swann 01707 328111 x3319 Elaine Dockree 01438 781217. Meets every 6 weeks at local hospital to provide support to patients/carers. Includes refreshments, exercise class, guest speakers. Provides a warm welcome to all patients and carers who have been affected by lung cancer and mesothelioma.
West Hertfordshire Trust Support Group
Contact Linda Charalambous on 01923 217010. Welcomes lung cancer / mesothelioma patients. Held 1st Tuesday of the month 2-4pm at Stanborough Centre, 609 St Albans Road, Garston, Herts. WD25 9LJ. Including refreshments, guest speakers, complementary therapies, advice, information & support about disease, finances, treatments & what patients/carers wish to include.
Central Southern England
The Oxford Mesothelioma Patient and Carer Group is a newly established group, which is open to all patients and carers affected by Mesothelioma in the Thames Valley region.
The group meets monthly on a Wednesday from 2.00-3.30pm, at the Oxford Four Pillars Hotel, Sandford-on-Thames, Oxford, OX4 4GX. It is free of charge and refreshments are provided. The group aims to provide mutual support and an opportunity to share experiences and practical advice. Guest speakers are invited to discuss various aspects of the disease and symptoms. For more information please contact the Mesothelioma/Lung Cancer Specialist Nursing Team Hannah Ball, Melanie Rogers and Charlie Buckle on 01865 226119.
Hampshire Asbestos Support & Awareness Group (HASAG)
Contact: Lynne on 07940 328637 or Diane on 07792 543426
A friendly environment for sufferers of all asbestos related diseases and their families including the bereaved.
Support in Southampton
Meets 2nd Thursday of each month at 10:30 at St Marks Church, Archers Road, Southampton, S015 2LU.
Support in Portsmouth
HASAG also meets on 4th Thursday of each month at 10:30 at The Inn Lodge, Burrfields Road, Portsmouth, PO3 5HH.
Southend Lung Cancer and Mesothelioma Information and Support Group Contact: Jolly Barber, Jo Phelps or Michelle Palmer on 01702 435555 ext 6835. An informal group providing an opportunity to meet others in a similar position. Meets second Wednesday of the month 12.30pm to 2pm at Ashingdon and East Hawkwell Memorial Hall, Ashingdon Road, Ashingdon, Rochford, Essex SS4 3HF. Light refreshments.
East London Mesothelioma Support (ELMS)
Freephone Helpline: 0800 8766773 Between 17.00 - 22.00 - Area: East London (Newham, Tower Hamlets, Hackney). Services: support, guidance and information for patients, carers, relatives and friends.
Hands of Time Mesothelioma Support Group - Contact Dimbleby Cancer Care on 0207 188 5918. Richard Dimbleby Cancer Information & Support Service, 2nd Floor, Gassiot House, St Thomas Hospital, London, SE1 7EH. Meets 1st Tuesday of each month 11.00-13.00 for patients/carers. Refreshments provided.
Hillingdon Lung Cancer & Mesothelioma Support Group (Lung Talk). Contact Johanna Lynch or Lucy Pike, Lung Cancer Specialist Nurses, Tel. 01895 279584. Meets 2nd Friday every month 14.00 -16.00 at the hospital. Offers a place for patients & their carers to meet each other and obtain mutual support, guest speaks, complementary therapies and information about all aspects of disease and symptoms.
South West & Wales
Bristol and Beyond Asbestos Family Support is a support group covering a wide geographical area around the South West and into Wales and the Gloucester / Wiltshire borders. Our members consist of those suffering from asbestos related diseases, their families, friends, carers and the bereaved. We are a friendly welcoming group and look forward to hearing from prospective new members. For more information contact Rachael Wilson on 07544 213475 or Bristol_and_Beyond@yahoo.comSwindon & South West Support Groups
Contact Mrs Pat Lewis on 01793 532995. A group for widows and partners of asbestos sufferers. The group meets monthly for friendship and mutual support as well as practical help for people who are nursing a member of the family with asbestos disease.
Mesothelioma Online Community
The Macmillan Online Community website section includes a discussion forum for anyone affected by Mesothelioma.
Website Link: http://community.macmillan.org.uk/search/searchresults.aspx?q=mesothelioma
If you know someone between 12 and 21 years old and someone close to them has Mesothelioma and they need to talk they can call the Macmillan YouthLine on: 0808 808 00 00 Email: firstname.lastname@example.org Monday - Friday 09.00 - 20.00
Mesothelioma UK - NMMRC undertakes no responsibility for the accuracy of any information contained in non-related websites or given by non-related organisations.