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Mesothelioma Patient & Carer
Monthly Bulletins for Healthcare Professionals

Discussion Forums and Social Networking

Discussion Forums for Mesothelioma

The Macmillan Cancer Support Share website section includes 2 discussion forums for Mesothelioma.

The EPP Club is a message board solely for Mesothelioma patients who have had surgery. The EPP Club would value any contribution from you regarding your experiences.

Social Networking

Mesothelioma Warriors on Facebook
The Mesothelioma warriors has been created to support anyone affected by asbestos exposure and/or Mesothelioma. It has grown from 3-4 people to 111 within the last 2 years and continues to grow. Mesothelioma Warriors has members all over the world, This means that there is almost always someone online. Debbie Brewer, Mesothelioma Warrior.

PATIENT BLOGS

Deidre vanGerven lost her husband Thom vanGerven on June the 1^st 1997 and as a result has set up this fantastic website in honour of her beloved husband. In Deidre's site you will find detailed information about asbestos and mesothelioma along with some touching and personal thoughts from Deidre and her family.

Steve Wride was diagnosed with mesothelioma on the 16^th June 2009 and his wife Linda has set up a blog to document their experiences. Linda describes the hopes and fears that anyone living with mesothelioma as a patient or a carer would be able to relate to.

Mavis Nye was diagnosed with mesothelioma when she was exposed to asbestos from her husband's work clothes decades ago. However since the diagnosis Mavis has certainly been busy having set up two websites and written a book about the day to day life of dealing with mesothelioma and has become an active part of Meso Warriors. Mavis was awarded with the IATP 2013 Award for her work in making Asbestos awareness around the world. http://www.youtube.com/watch?v=K4xlHyuPbY0&feature=youtu.be

Debbie Brewer was diagnosed with mesothelioma on the 13^th November 2006 which was a double shock as her dad had died just months before due to an asbestos related disease. Debbie has set up this wonderful blog which tell her story of living with mesothelioma with all the highs and the lows that come with it.

Veronica (Ronny) White was diagnosed with mesothelioma in April 2008 and has since set up a fantastic blog which documents her own personal experiences with mesothelioma and how it has affected her and her family.

An anonymous blog written by a partner of a mesothelioma patient. The blog is unique in looking at the disease and the emotions surrounding it in a philosophical way.

http://tessgully.blogspot.com/
This is Tess Gully's story of coping with mesothelioma one year after diagnosis.

Click on the Dahlia to read Janet Egerton's story and blog about her journey with mesothelioma.

If you would like to include your BLOG please do contact 0800 169 2409 or email mesothelioma.uk@uhl-tr.nhs.uk